Kualitas hidup pada ibu dari anak dengan attention deficit hiperactivity disorder

Authors

  • Sofia Nurinawati Universitas Padjadjaran
  • Fredrick Dermawan Purba Universitas Padjadjaran
  • Laila Qodariah Universitas Padjadjaran

DOI:

https://doi.org/10.22219/jipt.v9i2.15431

Keywords:

ADHD , mothers of children with ADHD, phenomenology, quality of life

Abstract

Having an attention deficit hyperactivity disorder (ADHD) child is certainly not easy in her care. Mother, as the most dominant figure in her parenting, certainly experienced psychological impact. This study aims to describe the experience of mothers who are parenting with ADHD related to their quality of life. This research is qualitative research with a Phenomenological approach. The study participants consisted of 5 mothers of children with ADHD aged 36-45 years. Data retrieval is done using semi-structured interviews. Data analysis using thematic analysis. The quality of life in mothers of children with ADHD can be described through 23 themes divided into four domains of quality of life: physical, psychological, social, and environmental. In the physical domain, parenting with ADHD affects daily activities that cause mothers to feel tired. In the psychological domain, the mother feels a variety of feelings from the beginning of the diagnosis to during parenting. In the social relation domain, parenting with ADHD affects maternal relationships. In the environment domain, some costs need to be incurred for the child. Mothers are also able to get new information and lessons during parenting with ADHD.

Downloads

Download data is not yet available.

References

American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders; Fifth Edition.

American Psychiatric Publishing. Andrade, E. M., Geha, L. M., Duran, P., & Suwwan, R. (2016). Quality of life in caregivers of ADHD children and Diabetes Patients. Frontiers in Psychiatry, 7(127), 1-6. https://doi.org/10.3389/fpsyt.2016.00127

Braun, V., & Clarke, V. (2008). Using thematic analysis in psychology. Qualitative Research in Psychology,3 (2)(2006), 77–101. https://doi.org/10.1191/1478088706qp063oa

Cappe, E., Boldue, M., Rouge, M.-C., Saiag, M.-C., & Delorme, R. (2016). Quality of lif , psychological characteristics, and adjustment in parents of children with Attention-Deficit Hyperactivity Disorder. Qual Life Res, 26 (5), 1283-1294. https://doi.org/10.1007/s111360161446-8

Castillo-Montoya, M. (2016). Preparing for Interview Research: The Interview Protocol Refinement Framework. The Qualitative Report, 21(5), 811–831. https://doi.org/10.46743/2160-3715/2016.2337

Chen. J.Y., Clark, M.J., Chang, Y.Y., Liu YY. (2015). Anxiety, decision conflict, and health in caregivers of children with ADHD: A survey. Journal of Pediatric Nursing, 30(4), 568–579. https://doi.org/10.1016/j.pedn.2015.01.021

Corcoran, J., Schildt, B., Hochbrueckner, R., & Abell, J. (2016). Parents of children with attention deficit/ hyperactivity disorder: A meta-synthesis , part I. Child and Adolescent Social Work Journal, 34, 281–335. https://doi.org/10.1007/s10560-016-0465-1

Creswell, J. W. (2007). Qualitative inquiry and research design: Choosing among five approaches, 2nd ed. Sage Publications,Inc.

Creswell, J. W., & Creswell, J. D. (2018). Research design qualitative, quantitative, and mixed-method approaches: Fifth

Edition. SAGE Publishing. Dey, M., Castro, R. P., Haug, S., & Schaub, M. P. (2018). Quality of life of parents of mentally ill children: A systematic review and meta-analysis. Epidemiology and Psychiatric Sciences, 28(5), 563-577. https://doi.org/10.1017/S2045796018000409

Harazni, L., & Alkaissi, A. (2016). The experience of mothers and teachers of attention deficit/ hyperactivity disorder children, and their management practices for the behaviors of the child a descriptive phenomenological study. Journal of Education and Practice, 7(6), 1–21. Retrieved from https://eric.ed.gov/?id=EJ1092501

Harpin, V. A. (2005). The effect of ADHD on the life of an individual, their family, and community from preschool to adult life. Archives of Disease in Childhood, 90(suppl 1),i2–i7. https://doi.org/10.1136/adc.2004.059006

Jafari, P., Ghanizadeh, A., Akhonzadeh, S., & Mohammadi, M. R. (2011). Health-related quality of life of Iranian children with attention-deficit / hyperactivity disorder. Qual Life Res, 20, 31-36. https://doi.org/10.1007/s11136-010-9722-5

Johnston, C., & Mash, E. J. (2001). Families of children with attention-deficit/ hyperactivity disorder: Review and recommendations for future research. Clinical Child and Family Psychology Review, 4(3), 183–207. https://doi.org/10.1023/A:1017592030434

Karimirad, M. R., Noghani, F., Oghli, S. H., Noorian, S., & Amini, E. (2019). Quality of Life in the Mothers of Children With Attention Deficit Hyperactivity Disorder and its Effective Factors. Shahrekord University of Medical Sciences, 6(4), 158–163.

Karimzadeh, M., Khodabakhshi-koolaee, A., Davoodi, H., & Heidari, H. (2020). Experiences and worries in mothers with children suffering from ADHD: A grounded theory study. Caspian Journal of Pediatrics, 6, (1), 390–398. Retrieved from http://caspianjp.ir/browse.phpaid=115&sid=1&slc lang=en

Klassen, A. F., Miller, A., & Fine, S. (2014). Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/ hyperactivity disorder. Pediatrics, 114, e541. https://doi.org/10.1542/peds.2004-0844

Korstjens, I., & Moser, A. (2018). Series: Practical guidance to qualitative research. Part 4: Trustworthiness and publishing. European Journal of General Practice, 24, (1), 120–124. https://doi.org/10.1080/13814788.2017.1375092

Leitch, S., Sciberras, E., Post, B., Gerner, B., Rinehart, N., Nicholson, J. M., & Evans, S. (2019). Experience of stress in parents of children with ADHD: A qualitative study. International Journal of Qualitative Studies on Health and Well-Being, 14, (1), 1690091. https://doi.org/10.1080/17482631.2019.1690091

Mash, E. J., & Wolfe, D. A. (2016). Abnormal Child Psychology (Sixth Edit). USA: Cengage Learning. Matar, M., & Zahreddine, N. (2019). My child has ADHD, am I ok?”: The psychological burden of caring for an ADHD child in Lebanon and its association to caregivers’ mental health. Lebanese Science Journal, 20, (3), 468–493. https://doi.org/10.22453/LSJ-020.3.468-494

Moen, Ø. L. (2014). Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role. Karlstad University Studies.

Moen, Ø. L., Hedelin, B., & Hall-lord, M. L. (2016). Family functioning, psychological distress, and well-being in parents with a child having ADHD. SAGE Open, 6(1), 1–10. https://doi.org/10.1177/2158244015626767

Oruche, U. M., Gerkensmeyer, J., Stephan, L., Wheeler, C. A., & Hanna, M. (2012). The described experience of primary caregivers of children with mental health needs. Psychiatric Nursing, 26 (5), 382–391. https://doi.org/10.1016/j.apnu.2011.12.006

Peasgood, T., Bhardwaj, A., Brazier, J. E., Biggs, K., Coghill, D., Daley, D., . . . Sonuga-barke, E. J. S. (2020). What is the health and well-being burden for parents living with a child with ADHD in the United Kingdom?. Journal of Attention Disorders 1–15. https://doi.org/10.1177/1087054720925899

Varni, J. W., & Burwinkle, T. M. (2006). The pedsQL TM as a patient-reported outcome in children and adolescents with Attention-Deficit / Hyperactivity Disorder: A population-based study. Health and Quality of Life Outcomes, 4(26), 1–10. https://doi.org/10.1186/1477-7525-4-26

World Health Organization. Division of Mental Health. (1996). WHOQOL-BREF : Introduction, administration, scoring and generic version of the assessment: Field trial version, December 1996. World Health Organization. https://apps.who.int/iris/handle/10665/63529

Xiang, Y., Luk, E. S. L., & Lai, K. Y. C. (2009). Quality of life in parents of children with attention-deficit hyperactivity disorder in Hong Kong. Australian and New Zealand Journal of Psychiatry, 43(8), 731–738. https://doi.org/10.1080/00048670903001968

Downloads

Published

2021-08-17

How to Cite

Nurinawati, S. ., Purba, F. D. ., & Qodariah, L. . (2021). Kualitas hidup pada ibu dari anak dengan attention deficit hiperactivity disorder . Jurnal Ilmiah Psikologi Terapan, 9(2), 131–141. https://doi.org/10.22219/jipt.v9i2.15431

Issue

Section

Articles